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YAYA REN
Department of Anthropology
Emory University
Project title: "Families in Crisis: The Making
of a Family Person in the Neonatal Intensive Care Unit (NICU)"
This MARIAL Project is centered on understanding how the youngest
in American Society comes to achieve the status of a person through
its initiation into a particular family. Bringing changes to the
family structure, a new baby is often integrated into the social
world through common ritual practices such as baby showers, christenings,
naming ceremonies, and birth announcements. However, what happens
to this integration process when expectations of a successful birth
are replaced with the heartache of a premature one?
Born too early, premature infants are unprepared for a life outside
the womb. Most premature infants cannot survive without modern life
support technology and neonatal medical treatment. As young as 23-24
weeks, the smallest of premature infants can weigh less than 1500g
(about a handful of grapes) and are no bigger than a palm pilot.
Premature bodies often are not yet well-developed enough to perform
many basic functions, such as suckling, breathing, blinking, and
crying, that we take for granted in newborn full-term infants.
While under NICU treatment, premature infants inhabit open-elevated
beds, immobilized in a spread eagle position, and sometimes glowing
from the red hue of heat lamps under Saran Wrap covered beds. Hauntingly
silent, the neonate often cannot yet move, suckle, swallow, or even
cry.
Despite the fact that most premature infants will survive the NICU
and some may not even show any signs of disabilities, this period
of time is nevertheless extremely stressful and disturbing for most
parents. Families are emotionally unprepared for the sight of a
premature infant under NICU treatment. In confronting the realities
of a premature birth, families are often faced with many difficult
decisions regarding the course of a neonates treatment, including
the possibility of withdrawal of treatment from those sickest. Furthermore,
families must also prepare for the possibility of caring for a disabled
infant who may need continued high-cost medical care and treatment.
This project will examine the social and cultural processes which
affect the manner in which a liminal premature body comes to be
accepted as a person and as the newest member of a family in the
face complicating and competing medical, legal, economic, political,
and social realities. More general theoretical questions I will
consider include: Are common ritual practices adequate in managing
new and difficult circumstances of a premature birth? How are premature
infants accepted, rejected renegotiated, reinvented, and reconciled
in the course of unfamiliar and unusal circumstances? Are new rituals
generated under such out of the ordinary circumstances? If so, how?
At the same time, I will also take into consideration how the physiological
development of the neonatal body itself affects a familys
conceptualization of their baby as an infant-person rather than
as an unfamiliar foreign body. Third, I will consider potential
political, economic, and legal constraints and hurdles that families
of premature infants face when making difficult treatment decisions.
How much does neonatal care cost and who will pay for it? What political
agendas drive crucial definitions such as handicapped
premature and infant? Do parents have a
right to withdraw care from a premature infant? What does the best
interest of the child standard really mean and what constraints
does it place on a familys autonomy in deciding difficult
treatment decisions?
This project explores the relationship between family social ecology
and the regulation of stress physiology, with special attention
to the ways in which ritualization of family life moderates the
physiological impact of economic status. In Decatur, Georgia, I
will study childhood physiological reactivity in "middle class"
families, and its relation to two proxies for broader elements of
family social ecology: family routines and self-perceived economic
status. I view measurable family routines as proxies for the small-scale
daily ritualization of family life. I view the measurement of self-perceived,
relative economic status as a much more focused way to understand
the influences of "socioeconomic status," a gigantic and
often vaguely-conceptualized amalgamation of status-related markers,
on physical and mental health. The parents' workplace is arguably
the most important mesosystem affecting the daily life of the child
within the domains explored in this project. Thus, in relation to
these other variables, I will include in the daily activity logs
a specific category for "work-related activity," and examine
the extent to which families report that various aspects of the
workplace are relevant to their conceptualizations of economic security
and time allocation.
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